12th May 2012: Fishing Competition In Kent
On 12th May 2012, the Impy Inc Fishing Competition will be held at Greenacres Farm Fishery in Biddenden in Kent. The competition is open to all at a cost of £15 per entry (£10 non-refundable…
UK Conference Programme Now Available
The Cystinosis Foundation UK conference programme is now available. The conference takes place on September 24th at the Manchester Conference Centre and is due to start at 10.00 and expected to last until 17.00. View…
UK Conference Confirmation – September 24th
A huge number of you have registered your interest in the UK conference and there have been several requests to confirm whether the conference is taking place – the answer is simply “yes” and we…
19th-21st May: Day Of Hope Conference, California
The Cystinosis Research Foundation are pleased to announce their second Day Of Hope Family Conference in the Balboa Bay Club, Newport Beach, California from Thursday, May 19 until Saturday, May 21, 2011. This conference is…
Monster Sheffield Sponsored Walk – 9th April 2011
On 9th April 2011, a bumper 11 mile sponsored walk will be taking place in Sheffield in support of the Cystinosis Foundation UK. The walk starts at 9.00am at Sheffield Wednesday’s Hillsborough stadium (but walkers…
Summer Concert For Cystinosis
The Folkestone & Hythe Orchestral Society’s Annual Summer Concert will be held on Saturday 9th July 2011 at the Saga Pavilion, Sandgate. On this occasion the Society has elected the Cystinosis Foundation UK as their…
IMPORTANT – CONFERENCE SHUTTLE BUS TIME CHANGES
To all those going to the conference, please note the shuttle bus times have changed – please contact Quick Line to confirm the time of your shuttle bus. If you are unfamiliar with Venice Aiport,…
Support The Super Cycle Challenge
Please support Tom Naysmith and John Eldridge as they tackle the 108 miles and 5000 meters of ascent (that’s 3 times Ben Nevis) on the famed La Marmotte Sportive in France on July 3rd. This…
2010 International Conference (Update September 13th)
To all those going to the conference, please note the shuttle bus times have changed – please contact Quick Line to confirm the time of your shuttle bus. If you are unfamiliar with Venice Aiport,…
Support London Marathon Man Lee Vallett
Next month keen runner Lee Vallett will be running the London Marathon for the third time, and again fundraising on behalf of the Cystinosis Foundation UK. Lee has chosen to support the Foundation as a…