Luka Prepares for London Marathon
Luka Babiy, whose sister has cystinosis, is running the London Marathon this year despite never having previously ran a marathon. We are extremely grateful to Luka for choosing to raise money for us in this…
River Rat Racers Brave Gruelling Obstacle Course for Cystinosis
Last month Richard Ayre and friends completed the 10K Stockton River Rat Race in honour of Daniel Howell, who has cystinosis. In doing so they raised over £500, here’s a few words from Richard: “I…
Layla’s Fun Day – A Big Success!
Cystinosis Foundation UK would like to thank everyone that helped make Layla’s charity fun day a great success. The event took place in Surrey on 10th August and raised over £1,000. The organisers worked extremely…
Maddy’s Mad Mudders Get Muddy for Cystinosis
A group of adventurous fundraisers have recently completed a “Tough Mudder” challenge to raise money in honour of Madison, who has cystinosis. The event saw them taking on various obstacles and getting very muddy in…
Charity Fun Day for Layla
A big fundraising fun day event is taking place in aid of Layla, a brave 3 year old girl who has cystinosis, with all proceeds benefiting Cystinosis Foundation UK. The event is taking place on…
Registration Now Open! – 8th International Cystinosis Conference
The registration website for the 8th International Cystinosis Conference (24th-26th July 2014) is now live. Visit this link to view the conference agenda and find out how to register – http://www.agoralive.com/CystinosisFoundation/Event1/ We look forward to…
Save the Date! – 8th International Cystinosis Conference
The 8th International Cystinosis conference is going ahead on the 24th to the 26th of July 2014 at the Renaissance Manchester City Centre Hotel. The conference programme and booking system will be online very soon.…
Bears, Bags, Quilts and Snakes for Cystinosis Foundation UK
On Saturday 4 December, Marion Hutchison (Gran of Morven, age 4, who has cystinosis) and her friend Dorothy ran a pop-up shop in Selkirk in the Scottish Borders, selling handmade items and other bits and…
A Great Big Fundraiser!
A team of ten cyclists, lead by our very own Treasurer, Neil Hutchison, will be pedalling their way around the British Isles in May 2014. Their journey starts in Edinburgh and over the course of…
Matthew Completes the London Triathlon to Raise Funds
A massive thank you to Matthew Ainger for his efforts in completing the London Triathlon and, in doing so, raising the fantastic total of £2,808.56! Here’s Matts story in his own words: “My nephew Stefan…