The total amount raised from the Sheffield Walk, that took place in April this year in aid of the Cystinosis Foundation UK, has been announced. A whopping £8,576 has been raised by the 60 people… Sheffield Walk – Final Total Announced

Team Kempy managed to get “spotted” by Radio 5 Live who were reporting from Greenwich, the start location for the London Marathon. They swiftly got rounded up and gave a brief description on Radio 5… “Team Kempy” on Radio 5 Live plug the Cystinosis Foundation UK

The Cystinosis Research Foundation in the USA has successfully raised $1.3 million in a single night! Their annual fundraiser dinner, held at the Balboa Bay Club in Newport Beach, California, had over 300 attendees, including… USA Charity Night raises $1.3m!!

The Cystinosis Foundation UK would like to thank all the players and members of the 118th and 92nd Boys Brigade Old Boys football teams for raising £550 that will help fund Cystinosis research. The teams… Boys Brigade Old Boys Football Fundraiser For Foundation

The Cystinosis Foundation UK is organising a one day conference on Saturday 24th September at the Manchester Conference Centre and you can now register by printing and sending the Registration Form. The conference is being… Register For The UK Conference

Researchers at Sunderland University have recently received an £80,000 grant from the Cystinosis Research Network in the USA to help fund a new 3 year study that will focus on proteomic research (the study of… Sunderland University Receive Funding From USA

On the 9th April 2011 one of the largest ever events in aid of the Cystinosis Foundation UK took place as around 60 walkers took to the streets of Sheffield on a 11 mile journey… The Sheffield Walk Wonder

It takes your breathe away…well it certainly did in the case of Darren, the partner of Jessica Kemp whose daughters have Cystinosis. In February, Jessica shaved off all her golden locks after she was sponsored… It Takes Your Breathe Away