Twenty year-old Sarah Laing has Cystinosis. Her story and the research being undertaken at Sunderland University, not far from where Sarah lives, are told on a short ITV television broadcast. To see the full video,… Sarah Laing on ITV television
On 24th September 2011, over 100 people attended the UK Cystinosis conference at the Manchester Conference Centre– the first UK conference for several years and certainly the largest. Attendees included individuals from the Foundation itself,… UK Cystinosis Conference 2011
We’re pleased to announce Nephropathic Cystinosis Quest, a board game about Cystinosis. The game, is aimed at those 7 years old and above, but can be enjoyed by all ages. We have a limited supply… Cystinosis – The Board Game!
Congratulations, and a big thank you, to Amy Mace who managed to raise £220 from her garage sale on September 4th. Amy participated in the Capel-le Ferne garage safari. Participants were able to buy a… Garage Sale Success
A huge congratulations to the Berlin Wallies who completed the Berlin Marathon on Sunday 25th September and raised a whopping £7,057.40 for the Cystinosis Foundation UK in the process. The team, consisting of Neil Hutchison,… Berlin Wallies Wonder
Our on-line referral eStore has now been rebranded as Spend And Raise. Before you make any purchase on-line, check out our site at www.spendandraise.com/cystinosis and if the retailer is listed there, click their link and… Spend And Raise
Morven, daughter of Alex and Neil Hutchison, was diagnosed with Cystinosis at 9 months old. Since the diagnosis the family, who live in West Linton, south of Edinburgh, have been very keen to support the… Morven’s Story In The News
Chairman, Roy Forsyth, explains how you can help with Cystinosis Research if you are attending the Cystinosis UK Conference in Manchester on 24th September 2011… Hello all, We are delighted so many of you will… Help Cystinosis Research At The UK Conference
The Robert Gordon University has recently been awarded a grant of over £100,000 to continue its research into eye gels. The funding is provided by leading children’s medical research charity, Sparks, and will allow the… The Robert Gordon University Receive £100,000 Grant
Only 9 months after I reported that our research funds appeal had raised over £200,000, it is incredibly pleasing for me to be able to report that we have now just topped the £250,000 mark… Over Quarter Of A Million Now Raised!!!