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Cystinosis Foundation USA Newsletter Released

The Cystinosis Foundation USA has released their most recent newsletter detailing their progress in funding research, support for organisations around the world and other activities. Read The Newsletter.

CLIMB’s Latest Newsletter

The August Newsletter Is Now Available The latest CLIMB newsletter has been released: Read the August Newsletter. Who are CLIMB? CLIMB (Children Living with Inherited Metabolic Disorders) are a national organisation working on behalf of… CLIMB’s Latest Newsletter

Newsletter 2009 Issue 17

Issue 17 (September 2009) of our newsletter has recently been released and includes stories covering fund raising, research, experiences of dealing with Cystinosis and a retrospective of the first 10 years of the Foundation. Thank… Newsletter 2009 Issue 17

Newsletter 2009 Issue 16

Issue 16 (January 2009) of our newsletter has recently been released and all members should now have their copy. And a bumper edition it is too, with stories on research, medical notes and experiences of… Newsletter 2009 Issue 16