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Spring 2022 Newsletter

We published our first email newsletter in April 2022, this was sent to subscribers of our free mailing list and is also available to view at the link below. CFUK Newsletter – Spring 2022 This… 

Please Subscribe to Our New Mailing List

We are very excited to launch our new mailing list! By signing up for free at the link below you will receive our email newsletter to keep you up to date with the latest news,… 

Newsletter – November 2012

Issue 21 of the Foundation newsletter has recently been finalised and is available to download at the link below. Thank you to everyone who has contributed to the content. Newsletter November 2012 The paper version… 

Newsletter – November 2011

Issue 20 (November 2011) of our newsletter has recently been published and if you are a member of the Foundation you should receive your copy soon, or you can download it directly from the website… 

Cystinosis Foundation USA Newsletter Released

The Cystinosis Foundation USA has released their most recent newsletter detailing their progress in funding research, support for organisations around the world and other activities. Read The Newsletter.

November Newsletter Released

Issue 19 (November 2010) of our newsletter has recently been published and if you are a member of the Foundation you should receive your copy soon, or you can download it directly from the website… 

CLIMB’s Latest Newsletter

The August Newsletter Is Now Available The latest CLIMB newsletter has been released: Read the August Newsletter. Who are CLIMB? CLIMB (Children Living with Inherited Metabolic Disorders) are a national organisation working on behalf of… 

April 2010 Newsletter released

Issue 18 (April 2010) of our newsletter has recently been published and if you are a member of the Foundation you should receive your copy soon, or you can download direct from the site (requires… 

Newsletter 2009 Issue 17

Issue 17 (September 2009) of our newsletter has recently been released and includes stories covering fund raising, research, experiences of dealing with Cystinosis and a retrospective of the first 10 years of the Foundation. Thank…