The Cystinosis Foundation UK have registered with the recently formed Fundraising Standards Board. Charities signed up with the Board agree to adhere to a strict set of rules that ensure fundraising activities are undertaken responsibly.… 

One of the primary aims of the Cystinosis Foundation UK is to aid research, in order to help develop new medicines and improve existing ones. Professor Don Cairns, of the Robert Gordon University in Aberdeen,… 

Since July we are pleased to announce that we have now raised a further £10,000, bringing our campaign’s running total up to £122,828. This includes a £5,000 donation from the Grand Lodge within the last… 

The Royal Antediluvian Order of Buffaloes have donated their annual award for medical research to the CFUK and on the 1st September, at their national conference at the town hall in Dudley, a cheque for… 

What started as a neighbour asking if they could do a sponsored walk for recently diagnosed Cystinosis sufferer Holt Grier, soon became 150 people raising over $12,000! For the full story see: griertown.blogspot.com.