On Saturday 9th August, the Fishermen’s Mission held their annual Peterhead Harbours Open Day. This event involves various stands and stalls from local organisations and charities, including a stall for the Cystinosis Foundation UK, organised…
In the 2000 Olympics, Maria Pekli won the bronze medal in the 57kg Judo category. Beijing was to be her last Olympics, but when her son, Erik, was diagnosed with Cystinosis her career was put…
We are pleased to announce an update to our fundraising total – as of August 2008, we have now raised £138,030! This has been achieved through the support of many individuals and organisations. Fundraising activities…
In addition to the lectures provided by leading experts in the field of Cystinosis, the 2008 International Cystinosis Conference, held in Dublin, gave research teams the opportunity to present their work in the form of…
On June 27 and 28th of this year, the biennial International Cystinosis Conference was held in Dublin, Ireland. Over 200 delegates attended, including researchers, medical practitioners, representatives from the Irish government, Cystinosis sufferers, families of…