Newsletter 2008 Issue 15
Issue 15 (September 2008) of our newsletter has recently been released and all members should now have their copy. Thank you to everyone who has contributed to its content! If you have not received your…
26 Research Abstracts!
Twenty-six scientific abstracts studying the treatment and cause of Cystinosis originating from researchers from all over the world have been published in the October 2008 edition of Pediatric Nephrology. These 26 abstracts are the result…
Applications For A New Trustee
Would you like to be on the committee of the Cystinosis Foundation UK ? Our charity is now nearly 10 years old and during this time has run with a small committee of trustees who…
Princess For A Day
During August of this year, 7-year-old Avneet Seehra became a princess for a day, thanks to the “Make a Wish Foundation”. Avneet, who suffers from Cystinosis, was given a make over, taken to a local…
International Cystinosis Conference Report
On June 27 and 28th of this year, the biennial International Cystinosis Conference was held in Dublin, Ireland. Over 200 delegates attended, including researchers, medical practitioners, representatives from the Irish government, Cystinosis sufferers, families of…