Serena Celebrates 21st Anniversary Of Transplant
It was in 1990 that Sue Scott took the decision to donate a kidney to her daughter, Serena, who has Cystinosis. Now, in 2011, the Scott family are celebrating the 21st anniversary of the transplant…
BREAKING NEWS – UK CONFERENCE – MANCHESTER – SEPTEMBER 24th
The Cystinosis Foundation UK is organising a conference on Saturday September 24th at the Manchester Conference Centre. We are still in the early stages of organising this, so more details will follow soon. For now,…
Success In Singapore
On December 5th 2010, Chris and Erin Neesham ran the Singapore Half Marathon and successfully raised close to £3,000 for the Cystinosis Foundation UK. We are hugely grateful to them both for running through the…
Sunderland Opens New Science Complex
Sunderland University has been a focal point for the Cystinosis Foundation UK for several years now, with financial support being provided by the Foundation to fund research projects. Through the hard work of Professor Roz…
Call For Website / News Writing Assistance
The Cystinosis Foundation UK is looking for some extra assistance with writing news articles and producing content for the website. This voluntary role would involve writing and editing articles related to Cystinosis to be used…
Cystinosis Family In The News
Paul and Paula Ingham’s four-year-old son, Harley, was diagnosed with Cystinosis and the family were recently featured in Sheffield newspaper, the Sheffield Star. You can read the full story online at: The Sheffield Star. The…
CRN Conference – USA – 14th July 2011
The Cystinosis Research Network conference will take place between 14-16th July 2011 in San Francisco. The 3 day event will include sessions with researchers and medical professionals from the field of Cystinosis, as well as…
Sunderland University Research Video
We are grateful to Sunderland University for allowing us to reproduce this video outlining research at the university, including their work sponsored by the Cystinosis Foundation UK. The 4 minute film reviews research at Sunderland…
London Marathon Update – Martin’s On Track
A big well done to Martin Kemp, who yesterday ran the Silverstone Half Marathon as part of his training preparation for the London Marathon in May this year. Martin ran the half marathon, which included…
Monster Sheffield Sponsored Walk – 9th April 2011
On 9th April 2011, a bumper 11 mile sponsored walk will be taking place in Sheffield in support of the Cystinosis Foundation UK. The walk starts at 9.00am at Sheffield Wednesday’s Hillsborough stadium (but walkers…