A Great Big Fundraiser!
A team of ten cyclists, lead by our very own Treasurer, Neil Hutchison, will be pedalling their way around the British Isles in May 2014. Their journey starts in Edinburgh and over the course of… A Great Big Fundraiser!
Matthew Completes the London Triathlon to Raise Funds
A massive thank you to Matthew Ainger for his efforts in completing the London Triathlon and, in doing so, raising the fantastic total of £2,808.56! Here’s Matts story in his own words: “My nephew Stefan… Matthew Completes the London Triathlon to Raise Funds
Further Funding for Sunderland Prodrug Development
We are pleased to announce that we have extended the funding to University of Sunderland to continue their work on Developing a Prodrug for the treatment of Cystinosis. This £75,000.00 of funding will support the… Further Funding for Sunderland Prodrug Development
Great Scot!
Massive thanks and congratulations to John Hannah, who finished the Bank of Scotland Great Scottish Run Half-Marathon in 1 hour 44 minutes last weekend – a new personal best! In doing so, he raised over… Great Scot!
Cycling the length of the country for CFUK
After donating a kidney to his son Ben last year, Jonathan Cox will be cycling from Land’s End to John O’Groats for Cystinosis Foundation UK in September. Yes, that’s almost 1000 miles. Jonathan is keen to… Cycling the length of the country for CFUK
A barnstorming fundraiser!
There have been some incredible fundraising efforts for the Foundation over the past few years, but the Guild family from Ayrshire in Scotland really have raised the barn! Emma and Stevie, whose daughter Erin has… A barnstorming fundraiser!
2014 International Conference
We are delighted to announce that the 8th International Cystinosis Conference will be held in Manchester, UK in late July 2014. Further details of location and date will be issued soon. We are looking forward… 2014 International Conference
Sweet Success
Riley was diagnosed with cystinosis, at the age of 16 months, in January this year. His family decided to try and raise money for Cystinosis Foundation UK. They immediately set up a JustGiving page and were overwhelmed with their friends… Sweet Success
NEW WEBSITE
The Trustees are delighted to welcome you to our new website. We hope you like the new design, which is meant to make it easier for you to find what you need. Massive thanks to… NEW WEBSITE
Team Tache Dash for Cash at Great Manchester 10K Run!
Congratulations to Damien Froehlich, Emily Froehlich, Cheryl Leigh and Lisa Tattersall, also known as Team Tache Dash for Cash, for completing the Bupa Great Manchester 10K Run on Sunday 26th May. They joined 40,000 other… Team Tache Dash for Cash at Great Manchester 10K Run!