Remember to use easyfundraising for all your shopping. It includes lots of big retailers – all you need to do is first go to easyfundraising.org.uk/causes/cystinosis-foundation-uk and select the link to your retailer and they will donate… Buy and Sell Online
If you are a UK tax payer, by completing our Gift Aid Declaration, we can claim tax back from the Government making your donation worth about 25% more, at no cost to yourself! And higher rate… Raise More Through Gift Aid
You can easily donate in a variety of ways: Online at Just Giving. Send a cheque made payable to The Cystinosis Foundation UK at the address on our contacts page. Make a regular contribution. Donate via bank transfer to our… Donate Now
After joining our mailing list you will be sent our periodic newsletter. We will keep you informed of news and events, as and when they occur. Find out more…
The Foundation has been made aware that some families have recently been having difficulty receiving cysteamine eye drops at the correct dose of 0.55%. We have made enquiries to various different organisations into this and… Are you receiving the correct eye drops?
A big thank you to Scott Hutchison of the band Frightened Rabbit for raising nearly £800 for CFUK over Christmas. Scott, uncle to 2 year-old Morven Hutchison, who has cystinosis, wrote, recorded and published this… A Merry Christmas from Frightened Rabbit
Thanks to the staff at Glasgow Airport, who treated 11-year-old Zac Borland to what sounds like a dream come true for any boy. As reported in the Daily Record at the link below, Zac, who… Cystinosis in the news – Zac’s day at the airport