Spend And Raise
Our on-line referral eStore has now been rebranded as Spend And Raise. Before you make any purchase on-line, check out our site at www.spendandraise.com/cystinosis and if the retailer is listed there, click their link and…
Morven’s Story In The News
Morven, daughter of Alex and Neil Hutchison, was diagnosed with Cystinosis at 9 months old. Since the diagnosis the family, who live in West Linton, south of Edinburgh, have been very keen to support the…
Help Cystinosis Research At The UK Conference
Chairman, Roy Forsyth, explains how you can help with Cystinosis Research if you are attending the Cystinosis UK Conference in Manchester on 24th September 2011… Hello all, We are delighted so many of you will…
The Robert Gordon University Receive £100,000 Grant
The Robert Gordon University has recently been awarded a grant of over £100,000 to continue its research into eye gels. The funding is provided by leading children’s medical research charity, Sparks, and will allow the…
Over Quarter Of A Million Now Raised!!!
Only 9 months after I reported that our research funds appeal had raised over £200,000, it is incredibly pleasing for me to be able to report that we have now just topped the £250,000 mark…
Foundation Looking For New Trustee
Would you like to be on the committee of the Cystinosis Foundation UK? Our charity is over 10 years old and during this time has run with a small committee of trustees who meet around…
UK Conference Programme Now Available
The Cystinosis Foundation UK conference programme is now available. The conference takes place on September 24th at the Manchester Conference Centre and is due to start at 10.00 and expected to last until 17.00. View…
Positive Results On Slow Release Cysteamine Trials
Raptor Pharmaceutical Phase 3 trials with slow release Cysteamine have yielded positive results and the firm is looking to extend the trial as well as filing for marketing approval in the USA and European Union.…
Berlin Wallies Marathon
Four friends, hence forth known as the "Berlin Wallies" have signed up to do the Berlin Marathon to raise money for the Cystinosis Foundation UK. The marathon takes place on 25th September 2011 and the…
Sky Dive & School Fundraising Events Top £3,000
A sky diving teacher and a week of school fundraising events has raised over £3,000 for the Cystinosis Foundation UK! After hearing how several members of one of her student’s families has Cystinosis, teaching assistant…