Wrist Bands
We have a new stock of wristbands for sale. Please contact us if you wish to purchase any. They cost £2 each plus postage and packing. All monies raised go directly to the Foundation to… Wrist Bands
Another Amazing USA Fundraiser
Congratulations to the Cystinosis Research Foundation on yet another successful golf day fundraiser. The Cystinosis Research Foundation raised over $215,000 on the 14th November during its Fore A Cure, Natalie’s Wish Golf Tournament at the… Another Amazing USA Fundraiser
Cycle In Memory Of Acacia
Acacia Dawn Robinson was only 4 months old when, tragically, severe heart complications ended her life prematurely. As a mark of gratitude for the support the family received, Acacia’s grandparents, Michael and Julia Robinson, decided… Cycle In Memory Of Acacia
Sock Site Exciting Success
Congratulations and a big thank you to the Yates family for all their work in creating TheSockDrawer auction website, raising money for the Cystinosis Foundation UK! Patrick Yates, website creator, picks up the story: "The… Sock Site Exciting Success
A Wish Come True For Thomas
Nine-year-old Thomas Goulsbra has Cystinosis. Recently he also had the added complication of going through a lumbar puncture to relieve fluid on his brain. This has been a trying time for the family, but a… A Wish Come True For Thomas
Sarah Laing on ITV television
Twenty year-old Sarah Laing has Cystinosis. Her story and the research being undertaken at Sunderland University, not far from where Sarah lives, are told on a short ITV television broadcast. To see the full video,… Sarah Laing on ITV television
UK Cystinosis Conference 2011
On 24th September 2011, over 100 people attended the UK Cystinosis conference at the Manchester Conference Centre– the first UK conference for several years and certainly the largest. Attendees included individuals from the Foundation itself,… UK Cystinosis Conference 2011
Cystinosis – The Board Game!
We’re pleased to announce Nephropathic Cystinosis Quest, a board game about Cystinosis. The game, is aimed at those 7 years old and above, but can be enjoyed by all ages. We have a limited supply… Cystinosis – The Board Game!
Garage Sale Success
Congratulations, and a big thank you, to Amy Mace who managed to raise £220 from her garage sale on September 4th. Amy participated in the Capel-le Ferne garage safari. Participants were able to buy a… Garage Sale Success
Berlin Wallies Wonder
A huge congratulations to the Berlin Wallies who completed the Berlin Marathon on Sunday 25th September and raised a whopping £7,057.40 for the Cystinosis Foundation UK in the process. The team, consisting of Neil Hutchison,… Berlin Wallies Wonder