The Cystinosis Foundation UK is organising a one day conference on Saturday 24th September at the Manchester Conference Centre and you can now register by printing and sending the Registration Form. The conference is being…
Researchers at Sunderland University have recently received an £80,000 grant from the Cystinosis Research Network in the USA to help fund a new 3 year study that will focus on proteomic research (the study of…
On the 9th April 2011 one of the largest ever events in aid of the Cystinosis Foundation UK took place as around 60 walkers took to the streets of Sheffield on a 11 mile journey…
The Cystinosis Research Foundation are pleased to announce their second Day Of Hope Family Conference in the Balboa Bay Club, Newport Beach, California from Thursday, May 19 until Saturday, May 21, 2011. This conference is…
It takes your breathe away…well it certainly did in the case of Darren, the partner of Jessica Kemp whose daughters have Cystinosis. In February, Jessica shaved off all her golden locks after she was sponsored…
A "guess the squares" raffle, run by Elizabeth Forsyth (grandmother of Lena Forsyth who has Cystinosis) was given a boost, when Scotland’s First Minister, Alex Salmond, re-donated a bottle of Scottish Parliament whisky. Read More……
April has been a big month for the Foundation and its supporters. We have had a significant number of big events happening and to quote our treasurer, Gareth Jackson, "The latest total is £227,224.27 and…
It was in 1990 that Sue Scott took the decision to donate a kidney to her daughter, Serena, who has Cystinosis. Now, in 2011, the Scott family are celebrating the 21st anniversary of the transplant…
The Cystinosis Foundation UK is organising a conference on Saturday September 24th at the Manchester Conference Centre. We are still in the early stages of organising this, so more details will follow soon. For now,…
On December 5th 2010, Chris and Erin Neesham ran the Singapore Half Marathon and successfully raised close to £3,000 for the Cystinosis Foundation UK. We are hugely grateful to them both for running through the…