UK Conference Confirmation – September 24th
A huge number of you have registered your interest in the UK conference and there have been several requests to confirm whether the conference is taking place – the answer is simply “yes” and we…
Golfing Record Broken In Aid Of Cystinosis
Congratulations to 27-year-old Geno Bonnalie, of Lewiston, Idaho, USA, who set a new world record for playing the most holes of golf in a week and the greatest number of birdies in a week. Geno…
Cystinosis Foundation USA July 2011 Newsletter Released
The Cystinosis Foundation USA has released their July 2011 newsletter detailing their progress in funding research, support for organisations around the world and other activities. Read The Newsletter.
Have you registered with the Cure Cystinosis International Registry (CCIR)?
If you or your child suffers from Cystinosis then the CCIR are calling for you to register. The CCIR is the ONLY International Cystinosis Registry in the world, and they need as many Cystinotics to…
Cystinosis Research Foundation Promotional Video 2011
The Cystinosis Research Foundation, USA, has released a series of videos from recent events they have undertaken, as well as their 2011 promotional video. This video gives a brief background on Cystinosis and details some…
Cystinosis Foundation USA Newsletter Released
The Cystinosis Foundation USA has released their most recent newsletter detailing their progress in funding research, support for organisations around the world and other activities. Read The Newsletter.
Sheffield Walk – Final Total Announced
The total amount raised from the Sheffield Walk, that took place in April this year in aid of the Cystinosis Foundation UK, has been announced. A whopping £8,576 has been raised by the 60 people…
“Team Kempy” on Radio 5 Live plug the Cystinosis Foundation UK
Team Kempy managed to get “spotted” by Radio 5 Live who were reporting from Greenwich, the start location for the London Marathon. They swiftly got rounded up and gave a brief description on Radio 5…
USA Charity Night raises $1.3m!!
The Cystinosis Research Foundation in the USA has successfully raised $1.3 million in a single night! Their annual fundraiser dinner, held at the Balboa Bay Club in Newport Beach, California, had over 300 attendees, including…
Boys Brigade Old Boys Football Fundraiser For Foundation
The Cystinosis Foundation UK would like to thank all the players and members of the 118th and 92nd Boys Brigade Old Boys football teams for raising £550 that will help fund Cystinosis research. The teams…