The Sunderland Today newspaper has covered a story involving young children who are either awaiting or have received kidney transplants. This includes Amy Mellors, a Cystinosis sufferer, who underwent a kidney transplant operation that has…
We are sorry to announce that CLIMB were unsuccesful in their attempt to secure Lottery funding this year. CLIMB were successful in reaching the regional finals, but did not secure enough votes to progress to…
Hope, the quarterly newsletter for the organsation Patients’ Voice For Medical Advance, has featured two articles regarding Cystinosis written by Dr Roz Anderson, a researcher at the University of Sunderland, and Roy Forsyth, a member…
The Buchan Motorcycle Club recently raised £420 at their fundraising dance in the Country Park hotel in Mintlaw, north of Aberdeen. The night was thoroughly enjoyed by approximately 100 people who danced the night away…
As of the end of October 2005, we have raised £61,000 towards our £100,000 appeal target! This is a tremendous achievement and we are grateful to all those involved in the fund raising. The majority…
CLIMB, National Information and Advice Centre for Metabolic Diseases, has been selected to go through to the regional final of the National Lottery Awards 2005. CLIMB needs your support for their project so that they…
The Buchan Observer has covered the story of 4-year-old Lena Forsyth, from Mintlaw in North East Scotland, as she starts school and how she and her parents are dealing with combining their Cystinosis medicine routines…
On September 11, 2005, in North East Scotland, the Longside charity cycle ride took place, and so far over £4,000 has been raised for three charities, including the Cystinosis Foundation UK. Taking part in the…
A memorial was held in New York City on the 10th of September for Mark Vaughan. Mark can be seen as something of an inspiration, not only acting in and producing many shows but also…
Shawn Reuter is an ordinary, happy, young boy, who lives with his mum, dad, brother and two sisters in Mapleton, MN, USA. However, Shawn and his brother, David, both have Cystinosis. This new book, written…