Super Chef Sells Sixty Pounds
As part of activities to mark Cystinosis Day, Philippa Blackham, who lives in Edinburgh, baked various cakes and biscuits, which were sold at a cake sale at W Greens, Legal Publishers, her place of work.…
£700 Raised At Dance Night
The grandparents of 5-year-old Cystinosis sufferer, Lena Forsyth, raised £700 for the Cystinosis Foundation UK at a dance night in Mintlaw, Aberdeenshire. The dance was held on Saturday, 20th May at the Mintlaw Public Hall…
Cystinosis Support Forum (USA)
The Cystinosis Foundation in the USA has for the last few years run a support forum for those connected and affected by Cystinosis. The forum is free to participate in and only requires that you…
News From Australia
It is well known that Cystinosis is a rare condition, and with only 30 diagnosed individuals across the whole of Australia and New Zealand, it can be even harder to cope with in these vast…
37 mile cycle for Cystinosis
On May 28th Max Kendell (13 years old) and his friend George Crossley (14 years old) raised nearly £200 for the Cystinosis Foundation by cycling 37.25 miles from Tutbury to Derby and back again! Their…
£78,522 Raised!
A further update to our research campaign – as of May 2006, we have now raised £78,522 towards our £100,000 appeal target! Yet again we thank all of those involved in raising funds – from…
We Need A Bike!
In September this year, Paul Clifford is hoping to cycle around 778km through Spain and France in order to raise money for the Cystinosis Foundation UK. This money will be used to fund the Foundation’s…
Fundraising Pack Now Available
We are pleased to announce that fundraising packs are now available for those wishing to organise their own fundraising events in support of the Cystinosis Foundation UK. These packs will be available in limited numbers,…
£7,000 Raised at Fundraiser Night
A wonderful night was had by all on Saturday 4th February at the Gosling Sports Centre in Hertfordshire. Organised by Tracy Lambe, cousin to Sinêad and Ciara Maguire who both have Cystinosis, it was a…
Cysteamine might be a treatment for Huntington’s Disease
Huntington’s Disease is a neurological condition that can bring on intellectual deterioration, leading to dementia. It is accompanied by symptons of depression and involuntary abnormal body movements. It is a rare condition that usually occurs…