Five-year-old Harley Ingham, who has cystinosis, is set to enjoy a trip with his family to Lego Land, thanks to Sheffield charity Help A Child Have A Chance and Sheffield newspaper The Star’s "12 Days… Theme Park Fun For Harley
On 12th May 2012, the Impy Inc Fishing Competition will be held at Greenacres Farm Fishery in Biddenden in Kent. The competition is open to all at a cost of £15 per entry (£10 non-refundable… 12th May 2012: Fishing Competition In Kent
Orphan Europe were one of our sponsors at the Cystinosis UK conference held in Manchester in September this year for whom we were very grateful . This article explains who they are and what their… Who Are Orphan Europe
28-year-old Alison Kirk, from Wallasey, Wirral, has cystinosis and has been on kidney dialysis since she was 11. However, despite the odds, Alison gave birth to Gracie Mae on 21st November 2011, becoming one of… Woman With Cystinosis Gives Birth
Issue 20 (November 2011) of our newsletter has recently been published and if you are a member of the Foundation you should receive your copy soon, or you can download it directly from the website… Newsletter – November 2011
We have a new stock of wristbands for sale. Please contact us if you wish to purchase any. They cost £2 each plus postage and packing. All monies raised go directly to the Foundation to… Wrist Bands
Congratulations to the Cystinosis Research Foundation on yet another successful golf day fundraiser. The Cystinosis Research Foundation raised over $215,000 on the 14th November during its Fore A Cure, Natalie’s Wish Golf Tournament at the… Another Amazing USA Fundraiser
Acacia Dawn Robinson was only 4 months old when, tragically, severe heart complications ended her life prematurely. As a mark of gratitude for the support the family received, Acacia’s grandparents, Michael and Julia Robinson, decided… Cycle In Memory Of Acacia
Congratulations and a big thank you to the Yates family for all their work in creating TheSockDrawer auction website, raising money for the Cystinosis Foundation UK! Patrick Yates, website creator, picks up the story: "The… Sock Site Exciting Success
Nine-year-old Thomas Goulsbra has Cystinosis. Recently he also had the added complication of going through a lumbar puncture to relieve fluid on his brain. This has been a trying time for the family, but a… A Wish Come True For Thomas