Allez les Cyclistes
We’d like to wish Tom Barlow and his compatriate Stuart all the best in their attempt at L’Étape du Tour. Having won two places to take part in L’Étape du Tour, where amateur cyclists race… Allez les Cyclistes
Adults Needed to Participate in Research Study
The Cystinosis in Emerging Adulthood study in coming to the UK! In June Maya Doyle, a social worker from the USA, will be in the UK conducting interviews for the ‘Cystinosis in Emerging Adulthood’ Study,… Adults Needed to Participate in Research Study
Cardgains Olympic Challenge – less than 3 weeks to go!
In March, we told you about the Cardgains Charity Challenge, which this year is a 30km walk through London in aid of Cystinosis Foundation UK. We just wanted to remind everyone who will be anywhere… Cardgains Olympic Challenge – less than 3 weeks to go!
The Hairy Hikers brave the elements for CFUK
Huge congratulations to Scott Clarkson, Jonathan Garrett and Richard Ayre (a.k.a. the Hairy Hikers – pictured) who completed the Lyke Wake Walk on 19 May 2012, raising over £2,000 for Cystinosis Foundation UK in the… The Hairy Hikers brave the elements for CFUK
TARGET REACHED – THANK YOU!
The Foundation is delighted to announce that it achieved its goal of raising £300,000. Since the original target of £100,000 was set in 2004, eventually increasing to £300,000 in 2010, a grand total of £312,261… TARGET REACHED – THANK YOU!
Quizzy Rascals
Well done to CFUK Trustee Neil Hutchison and his wife Alex, who raised £1,088 (and 15 pence!) through a quiz night and raffle hosted in their local bowling club in West Linton. The quiz, universally… Quizzy Rascals
Sisters raise awareness in national newspapers
Sisters Emily,3, and Poppy-Mae,23 months, have recently raised awareness for cystinosis by appearing in both the Sun and Daily Mail newspapers. Mum, Jessica Kemp, 25, was eight months pregnant with Poppy-Mae when Emily was finally… Sisters raise awareness in national newspapers
An Eggs-ellent Easter Fundraiser
Kelly Chilvers, mother of 17 month old Daniel Howell who has Cystinosis, is proud to report a very successful fundraiser for Cystinosis Foundation UK. Her aunt, Elaine Thomas, held a Coffee Morning and an Easter… An Eggs-ellent Easter Fundraiser
Derby Winners
2012 is a year where many hopeful athletes undergo hours of training and physical exertion in order to better themselves to compete in the Olympics. In that spirit, one of the Cystinosis Foundation UK trustees… Derby Winners
Card Gains June Challenge
On June 26th around 80 people will be taking part in the 2012 Card Gains Olympic Challenge! The challenges involves walking a 30 kilometre circular route, starting at Putney Wharf by the Thames in London,… Card Gains June Challenge