Nikki Wood is selling a range of handmade greetings cards through eBay, with proceeds going towards the charity. Click on the following link to view those available. These cards are superb value at 99p each.…
Despite the weather being more suited to sponsored snooker and darts, so many of you have donned the waterproofs and tackled amazing physical challenges to raise money for Cystinosis Foundation UK. Here are some of…
We’d like to wish Tom Barlow and his compatriate Stuart all the best in their attempt at L’Étape du Tour. Having won two places to take part in L’Étape du Tour, where amateur cyclists race…
The Cystinosis in Emerging Adulthood study in coming to the UK! In June Maya Doyle, a social worker from the USA, will be in the UK conducting interviews for the ‘Cystinosis in Emerging Adulthood’ Study,…
In March, we told you about the Cardgains Charity Challenge, which this year is a 30km walk through London in aid of Cystinosis Foundation UK. We just wanted to remind everyone who will be anywhere…
Huge congratulations to Scott Clarkson, Jonathan Garrett and Richard Ayre (a.k.a. the Hairy Hikers – pictured) who completed the Lyke Wake Walk on 19 May 2012, raising over £2,000 for Cystinosis Foundation UK in the…
The Foundation is delighted to announce that it achieved its goal of raising £300,000. Since the original target of £100,000 was set in 2004, eventually increasing to £300,000 in 2010, a grand total of £312,261…
Well done to CFUK Trustee Neil Hutchison and his wife Alex, who raised £1,088 (and 15 pence!) through a quiz night and raffle hosted in their local bowling club in West Linton. The quiz, universally…
Sisters Emily,3, and Poppy-Mae,23 months, have recently raised awareness for cystinosis by appearing in both the Sun and Daily Mail newspapers. Mum, Jessica Kemp, 25, was eight months pregnant with Poppy-Mae when Emily was finally…
Kelly Chilvers, mother of 17 month old Daniel Howell who has Cystinosis, is proud to report a very successful fundraiser for Cystinosis Foundation UK. Her aunt, Elaine Thomas, held a Coffee Morning and an Easter…