To all those going to the conference, please note the shuttle bus times have changed – please contact Quick Line to confirm the time of your shuttle bus. If you are unfamiliar with Venice Aiport,… IMPORTANT – CONFERENCE SHUTTLE BUS TIME CHANGES
US Pharmaceutical firm, Raptor, have successfully raised funds via a share issue to fund the next stage of trials for their new Cystinosis treatment. DR Cysteamine is the first drug from Raptor, and it is… Raptor Slow Release Treatment At Trial Stage
We are pleased to publish a conference report by Barbara Buchan of the Robert Gordon University in Aberdeen. Barbara, who is receiving funding by the Cystinosis Foundation UK, recently attended the Controlled Release Society’s 37th… Foundation Assists Robert Gordon University Attend Conference
There have been various discussions and notes of interest for a Cystinosis UK gathering in 2011. The Cystinosis Foundation UK is keen to facilitate and help organise a meeting for those of us affected by… Shall We Meet Up In 2011?
A big thank you goes to Elizabeth Forsyth, grandmother to Cystinotic Lena Forsyth, who had yet another fantastic fundraising day at the Peterhead Harbour Open Day on the 14th of August. Elizabeth ran the stall… Peterhead Harbour Open Day Success
On June 9th Chairman, Roy Forsyth, his wife Vicky and Secretary, John Terry, visited the School of Pharmacy and Life Sciences at the Robert Gordon University (RGU). Our host was Professor Don Cairns who moved… Visit To Robert Gordon University, Aberdeen
The August Newsletter Is Now Available The latest CLIMB newsletter has been released: Read the August Newsletter. Who are CLIMB? CLIMB (Children Living with Inherited Metabolic Disorders) are a national organisation working on behalf of… CLIMB’s Latest Newsletter
The Cystinosis Research Foundation have announced changes to their Scientific Review Board –
The Cystinosis Foundation UK are pleased to announce the sale of a series of luxury hand made cards, available for purchase on on-line. The cards have been prepared by hand by Nikki Woods and are… Hand Made Cards For Sale
A big well done and thank you are due to the children and teachers of Broomgrove Infants in Wivenhoe, Essex who raised over £100 for the Cystinosis Foundation UK during May this year. The children… Sponge Bob Money Saver