The 6th International Cystinosis Conference took place between Thursday 23rd and Sunday 26th September 2010, at the Village Getur (a dedicated Olympic standard training facility and conference centre) in Lignano, near Venice, Italy. Around 200… International Cystinosis Conference 2010
We are very pleased to announce that Martin Kemp has managed to secure a place in the 2011 London Marathon. Martin has already started his training, which has included participating in several local runs, but… London Marathon Place Confirmed
It is with great pleasure that I can report that our research funds appeal has now raised over £200,000 since it was launched – in fact precisely £206,605.66. The appeal initially had an optimistic hope… £200,000 Target Reached!
The Cystinosis Foundation UK chairperson, Roy Forsyth, reports on a recent visit to Sunderland University to present new equipment funded by a donation by the UK Foundation: "As part of our ongoing work with Sunderland… Funded Equipment For Sunderland
The Cystinosis Research Foundation in collaboration with the Cystinosis Foundation UK and other key Cystinosis leaders and organisations around the world have launched a patient-based international Cystinosis registry. The Cure Cystinosis International Registry (www.cystinosisregistry.org) will… Cure Cystinosis International Registry
Our thanks go to Roz Anderson and Lisa Frost at Sunderland University for allowing us to publish their research poster, which was recently presented at the International Cystinosis Conference in Lignano, near Venice, in Italy.… Sunderland Research
Further to other recent publications, we would again like to thank Barbara Buchan and the Cystinosis Research Team at the Robert Gordon University Aberdeen, for allowing us to publish their poster presentation reviewing their research… RGU Research – Alternative Cysteamine Delivery Systems – Eye Gels
The Cystinosis Foundation UK would like to thank Dorothy and Gordon Wood for their kind donation of £150 after asking family and friends to give money to the Foundation instead of giving them gifts. Dorothy… Diamond Wedding Anniversary Donation
We are grateful for the efforts of Corinne & David Yates, who have been busy creating sock puppets in order to raise money for the Cystinosis Foundation UK. However, the pair have not only given… Sock Puppets Raise £250
We are grateful to the Cystinosis Research Team at the Robert Gordon University Aberdeen, and in particular researcher, Barbara Buchan, for allowing us to publish their research poster presentation. The poster was presented at the… RGU Research – Alternative Cysteamine Delivery Systems