Spey Side Walk Story
Our thanks go to Colin Buist for allowing us to publish his account of his epic Speyside Way adventure with friends and family in April of this year. And thank you to all those involved… Spey Side Walk Story
USA Research Fellowship Announced
The Cystinosis Research Network (USA) are pleased to announce they have awarded funding for a three year Cystinosis research fellowship. Read More…
CLIMB Newsletter Published
The May Newsletter Is Now Available The latest CLIMB newsletter has been released: Read the May Newsletter. Who are CLIMB? CLIMB (Children Living with Inherited Metabolic Disorders) are a national organisation working on behalf of… CLIMB Newsletter Published
School Football Team Sponsorship
Awareness of Cystinosis and the Cystinosis Foundation UK is receiving a boost after Tony and Janet Sladdin agreed to sponsor Mintlaw Primary School’s football team strip. Tony and Janet are grandparents of Lena Forsyth, who… School Football Team Sponsorship
Lee’s London Success!
A huge “well done” is certainly due for Lee Vallett, who not only successfully completed the London Marathon last month, but also beat his target time and raised nearly £1,000 for the Cystinosis Foundation UK… Lee’s London Success!
Gel Formulations For Treatment Of The Ophthalmic Complications In Cystinosis
We are very grateful to Dr Graeme Kay, Lecturer in Pharmaceutical Science at The Robert Gordon University, Aberdeen, for allowing us to publish this research article into ‘Gel Formulations For Treatment Of The Ophthalmic Complications… Gel Formulations For Treatment Of The Ophthalmic Complications In Cystinosis
Sixty Five Mile Walk Success
Congratulations and thank you to the 10 strong team of walkers who successfully completed their 65 mile walk in Speyside, North-East Scotland, raising nearly £3,000 for the Cystinosis Foundation UK in the process. The group… Sixty Five Mile Walk Success
Family’s Fundraising Total Over £11,000!
CHARITY NIGHT IN MEMORY OF JACK CHAPMAN On Saturday 7th November 2009 a charity night was held at The Docklands Sailing Club in London to raise money for the Cystinosis Foundation UK. The event was… Family’s Fundraising Total Over £11,000!
Well Done Runner Jo
Well done to Jo Grant, who not only succesfully ran 8.2 miles on the 11th of April in the Kingston Breakfast Run, but also managed to reach her target of raising £350 for the Cystinosis… Well Done Runner Jo
£75,916 Raised
As of April 2006, we have now raised £75,916 towards our £100,000 appeal target – in other words over three quarters of the way there. This is down to the hard work of several individuals… £75,916 Raised