Team Twister is delighted to announce that throughout 2010, Tim Hastings will be promoting the Cystinosis Foundation UK. One of Tim’s long term supporters and sponsors is Tony Sladdin, whose eldest granddaughter Lena has the… Young Motorcycle Racer Promotes Foundation
The Cystinosis Research Foundation has made available the publication of "Long-Term Treatment of Cystinosis in Children with Twice-Daily Cysteamine" by a group of leading researchers, including Dr Ranjan Dohil. This publication details the results of… Twice-Daily Cysteamine Trials Update
To all those going to the conference, please note the shuttle bus times have changed – please contact Quick Line to confirm the time of your shuttle bus. If you are unfamiliar with Venice Aiport,… 2010 International Conference (Update September 13th)
Next month keen runner Lee Vallett will be running the London Marathon for the third time, and again fundraising on behalf of the Cystinosis Foundation UK. Lee has chosen to support the Foundation as a… Support London Marathon Man Lee Vallett
A music gig, featuring X-Factor star Olly Mars at the River Bar in London, helped raise £400 for the Cystinosis Foundation UK. We’d like to thank all those at the River Bar for their support… River Bar Gig Raises £400
The Cystinosis Foundation UK is incredibly proud to announce that we have now raised over £190,000, as of March 2010, and are now less than £10,000 from our target. This money is being used to… Fundraising Update – £190,793!
Jo Grant will be running in the Kingston Breakfast Run on 11th April 2010 to raise money for the Cystinosis Foundation UK. Jo states, "I only recently became aware of this charity as my friend’s… Support Jo Grant’s Run
An absolutely incredible $75,000 was raised at the ski resort of Schweitzer Mountain, Sandpoint, Idaho, USA in honour of cystinotic and Sandpoint resident, 3-year-old Henry Sturgis. The resort stayed open through the night last Friday,… $75,000 raised in 24 hour ski marathon
After 5 years of the same website, we were feeling old and felt it was time for a face lift – welcome to the new Cystinosis Foundation UK website! We hope you feel it is… Welcome To The New Site
Everyone at the Cystinosis Foundation UK would like to wish Stephen Crowder and Scott Kerins the best of luck as they undertake the Dubai Marathon on 22nd January 2010. The pair are preparing for the… Good Luck Dubai Runners