Cystinosis Foundation UK is proud to announce a momentous step forward in the fight against cystinosis: researchers at the University of Sunderland have received £3.9 million from the Medical Research Council (MRC) to take a… Cystinosis Foundation UK Celebrates Major Milestone: £3.9 Million Award to Advance Ground Breaking Treatment into Clinical Trials
Contributing to the Cambridge School of Clinical Medicine’s Patient Voice programme Our chair, Will, was delighted to receive an invitation to talk to Year 4 Medical Students at Cambridge School of Clinical Medicine in November… Talking the Talk
Our joint International Conference with CNE, held in Manchester in July 2024, was packed full of brilliant presentations by a range of contributors. We are delighted to be able to share with you a range… Watch back elements of the CNE International Conference 2024 – Better Together
We are looking forward with excitement to the CNE International Conference in Manchester that we are hosting on 26 and 27 July 2024. The conference will be based at a central Manchester hotel and we… CNE Conference Update – December 2023
The Cystinosis Network Europe (CNE) International Conference will be hosted by Cystinosis Foundation UK in Manchester, England, from 25th to 27th July 2024. The scientific meeting will be held on 25th July, with the family… CNE International Conference
On Saturday 10th Oct 2020 Cystinosis Foundation UK ran their first online Cystinosis Symposium, co-hosted by Metabolic Support UK as part of their 2020 Virtual Annual Conference. In a packed 2 hour session we heard… A First for CFUK – Cystinosis Symposium 2020 Report
As part of Metabolic Support UK’s 2 day virtual conference we are co-hosting a 2 hour interactive ‘Cystinosis Symposium’ breakout session on Saturday, 10th October 2020, 2-4pm. We’ll have the latest research updates, including the… Online ‘Cystinosis Symposium’ – Saturday, 10th October 2020
Following the cancellation of the International Cystinosis Conference in July due to coronavirus, Cystinosis Ireland and Cystinosis Network Europe have announced their decision to hold a ‘Virtual International Cystinosis Conference’ online. This will take place… Virtual International Cystinosis Conference – 25th April 2020
UPDATE: This event has been cancelled, a virtual conference will take place instead, on 25th April (see https://www.cystinosis.org.uk/events/virtual-international-cystinosis-conference-25th-april-2020/). The 2020 Cystinosis Network Europe Conference takes place at the Royal Marine Hotel in Dublin, Ireland from… CNE International Cystinosis Conference 2020
The 2018 European Cystinosis Conference is taking place in Berlin, Germany from July 13th to 15th. The main theme of the conference is “Growing Up with Cystinosis – The Opportunities and The Challenges”. At the… European Cystinosis Conference Berlin, 13th-15th July 2018