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2014 International Conference

We are delighted to announce that the 8th International Cystinosis Conference will be held in Manchester, UK in late July 2014. Further details of location and date will be issued soon. We are looking forward… 

Who Are Orphan Europe

Orphan Europe were one of our sponsors at the Cystinosis UK conference held in Manchester in September this year for whom we were very grateful . This article explains who they are and what their… 

UK Cystinosis Conference 2011

On 24th September 2011, over 100 people attended the UK Cystinosis conference at the Manchester Conference Centre– the first UK conference for several years and certainly the largest. Attendees included individuals from the Foundation itself,… 

UK Conference Programme Now Available

The Cystinosis Foundation UK conference programme is now available. The conference takes place on September 24th at the Manchester Conference Centre and is due to start at 10.00 and expected to last until 17.00. View… 

UK Conference Confirmation – September 24th

A huge number of you have registered your interest in the UK conference and there have been several requests to confirm whether the conference is taking place – the answer is simply “yes” and we… 

CRN Conference – USA – 14th July 2011

The Cystinosis Research Network conference will take place between 14-16th July 2011 in San Francisco. The 3 day event will include sessions with researchers and medical professionals from the field of Cystinosis, as well as… 

Sunderland University Research Video

We are grateful to Sunderland University for allowing us to reproduce this video outlining research at the university, including their work sponsored by the Cystinosis Foundation UK. The 4 minute film reviews research at Sunderland…