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Lessons for Lena

The Buchan Observer has covered the story of 4-year-old Lena Forsyth, from Mintlaw in North East Scotland, as she starts school and how she and her parents are dealing with combining their Cystinosis medicine routines… 

Longside Cycle Ride Raises £4,000

On September 11, 2005, in North East Scotland, the Longside charity cycle ride took place, and so far over £4,000 has been raised for three charities, including the Cystinosis Foundation UK. Taking part in the… 

Memorial to Mark Vaughan

A memorial was held in New York City on the 10th of September for Mark Vaughan. Mark can be seen as something of an inspiration, not only acting in and producing many shows but also… 

Living With Cystinosis – Our Story So Far

In 2001 Vicky and Roy Forsyth’s 7-month-old daughter suddenly fell ill as they were moving house. What was initially thought to be a bug, persisted and was eventually diagnosed as Cystinosis, turning their world upside… 

Football Fun Day Raises Over £2,500

Last weekend in Mintlaw (North East Scotland) a football charity match and disco helped raise money for the Cystinosis Foundation UK. At the time of writing the total stands at over £2,500, with a final… 

Solve Cystinosis Wristbands

The Cystinosis Foundation UK has launched its very own wristband. The funky blue band symbolises one of the Foundation’s key aims – to help solve Cystinosis. Purchasing and wearing a wrist band helps show your… 

A Child’s Napkin Inspires a Charity

When Natalie Stack’s parents asked her to make a wish, she didn’t want to wish for anything. But she wrote on a napkin that she wanted "to have my disease go away forever". Her cry…