Dr Roz Anderson, Sunderland Pharmacy School – Drug Design and Discovery, University of Sunderland. Cysteamine (now formulated and marketed as Cystagon®) is a lifesaver and its contribution to improving the prognosis and quality of life…
Dr Don Cairns, Robert Gordon University I have been working on cystinosis for about five or six years, initially at the University of Sunderland and now at The Robert Gordon University (RGU) in Aberdeen, where…
On May 22nd 2005, six staff from Pelikan Hardcopy (based in Turriff, between Aberdeen and Inverness) took the challenge to run the Aberdeen Baker Hughes 10K race, in order to raise money for the Cystinosis…
May 22nd saw Vicky and Roy Forsyth, along with their daughter Lena, Auntie Philippa and Uncle Matt, hosting a Cystinosis Foundation UK stall at the Longside Gala, near Aberdeen. The couple had organised various activities,…
On 23rd April 2005, Elizabeth Forsyth of Mintlaw (north of Aberdeen) organised a coffee morning raising £787.53 for the Cystinosis Foundation UK. Mrs Forysth’s granddaughter, Lena Forsyth, has been diagnosed with Cystinosis and Mrs Forysth…
Dr Dohil, who is a Pediatric Gastroenterologist at UC San Diego, is presently conducting a research study with the aim to determine where in the intestine cysteamine (CystagonTM) is absorbed. This information may help create…
Jan 18th 2005 Five months ago, in response to the Cystinosis Foundation UK’s campaign to raise £100,000 to fund research projects, Vicky and Roy Forsyth set out to raise £300 – since then they have…