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£6,880 Raised by Golf Charity Day

We are pleased to announce that Bob Rumney’s annual charity golfing day raised £6,880 for the Cystinosis Foundation UK. This is a tremendous achievement from a single event and we would like to thank Bob… 

Money from Mobil

The Cystinosis Foundation UK last week received a £1,000 ‘safety award’ from the ExxonMobil’s SAGE terminal at St Fergus near Aberdeen. The safety award encourages ExxonMobil employees to apply safe working practices in their place… 

Ending the Nightmare

The Sunderland Today newspaper has covered a story involving young children who are either awaiting or have received kidney transplants. This includes Amy Mellors, a Cystinosis sufferer, who underwent a kidney transplant operation that has… 

Lottery Funding Update

We are sorry to announce that CLIMB were unsuccesful in their attempt to secure Lottery funding this year. CLIMB were successful in reaching the regional finals, but did not secure enough votes to progress to… 

Cystinosis Articles Featured in ‘Hope’ Magazine

Hope, the quarterly newsletter for the organsation Patients’ Voice For Medical Advance, has featured two articles regarding Cystinosis written by Dr Roz Anderson, a researcher at the University of Sunderland, and Roy Forsyth, a member… 

£420 Raised by Motorcycle Club

The Buchan Motorcycle Club recently raised £420 at their fundraising dance in the Country Park hotel in Mintlaw, north of Aberdeen. The night was thoroughly enjoyed by approximately 100 people who danced the night away… 

£61,000 Raised!

As of the end of October 2005, we have raised £61,000 towards our £100,000 appeal target! This is a tremendous achievement and we are grateful to all those involved in the fund raising. The majority… 

Help Secure Funding for CLIMB

CLIMB, National Information and Advice Centre for Metabolic Diseases, has been selected to go through to the regional final of the National Lottery Awards 2005. CLIMB needs your support for their project so that they…