Charity Walk Raises £500
On July 29th over 25 walkers took part in an organised sponsored walk around Aden Country Park, near Mintlaw in the North East of Scotland, to raise funds for the Cystinosis Foundation UK. The 3.5…
Cystinosis Foundation UK to speak at Orphan Europe Conference
We are pleased to announce that Jonathan Terry, founder of Cystinosis Foundation UK, has been invited to speak at Orphan Europe’s International Meeting in October. Jonathan will be speaking for all generations with Cystinosis about…
International Conference Report 2006
The 4th International Cystinosis Conference was held at Noodwijkerhout in the Netherlands between June 30 – July 2 The conference brought together families living with Cystinosis and the best international experts. Over the 2 days,…
Bridge Day Raises £850
For the last five years, June Terry, the mother of Jonathan the founder of the Foundation, has held a Bridge Day. With the promise of coffee, lunch and tea as well as competitive bridge, she…
2006 International Cystinosis Conference – July 2006
John Terry, Cystinosis Foundation UK The Fourth International Cystinosis Conference was held in Noordwijkerhout in the Netherlands on the weekend 30 June to 2 July. I went with Jonathan and his mother, June, and attended…
Super Chef Sells Sixty Pounds
As part of activities to mark Cystinosis Day, Philippa Blackham, who lives in Edinburgh, baked various cakes and biscuits, which were sold at a cake sale at W Greens, Legal Publishers, her place of work.…