When researching any disorder that is genetic in origin, finding a cure can be greatly enhanced by being able to quickly identify the genes causing the condition. The problem is identifying which of the 25,000… Research in the USA helps identify disorder related genes quicker
In August, Ashley Kazian was crowned this year’s Miss America. And whilst this is a fantastic achievement for Ashley, it is also a major event for the Cystinosis Foundation in the USA, as she is… Newly crowned Miss USA supports Cystinosis awareness
The Jones Cup golf tournament, Orange County, California will this year be supporting the Cystinosis Research Foundation (USA) in honour of local businessman Marion Halfacre, who died earlier this year of heart complications. “I am… Golf Tournament Honours Cystinosis Research Foundation (USA) Supporter
Cystinosis sufferer, Sarah Laing, received a kidney transplant about a year ago. Until then, Sarah had to undergo dialysis 3 times a week after Cystinosis caused her kidneys to fail. Sidney the Kidney, as Sarah… Carry your Donor Card!
Cystinosis sufferer, Kellen Binger, looks forward to his swim meet, following a kidney transplant last year. For the full story please visit: www.checkbiotech.org.
Elizabeth Forsyth, grandmother to Cystinosis sufferer Lena Forysth, has again been busy raising funds for the Cystinosis Foundation UK. She spent the weekend at her local Asda in Peterhead, selling raffle tickets, quizzes and Cystinosis… Grandmother raises funds at Asda Raffle
The Cystinosis Foundation would like to thank the charity committee on the Apache Forties Charlie oil platform, in the North Sea near Aberdeen, for their kind donation of £150 to the Cystinosis Foundation UK. The… £150 Donation From Apache
Kevin Partington and wife, Teresa, have twin toddlers who both suffer from Cystinosis. Friends and colleagues organised a golf tournament and 5km walk that raised an amazing $406,000!! The full story can be read at… $400,000 raised for twins
The latest newsletter was recently sent out to the Foundation’s members but can also be downloaded here.
On July 7th, as part of ‘Cystinosis Day’, Gavin Reddington, the Cystinosis Foundation UK fund raiser, raised £500 during a bikers’ day at his local pub, the Sitwell Arms in Morton, Derbyshire! Live bands played… Bikers’ Day Raises £500