Help make your event stand out. We are pleased to announce that the Cystinosis Foundation UK is now able to provide tabards to help you with any fundraising you are undertaking on our behalf. They… 

Zowiann Flood suffers from Cystinosis, but her life has been transformed following a recent kidney transplant and she is now looking forward to her first piece of birthday cake on her 13th birthday in a… 

Every year, the Buchan Indoor Bowling Club in Aberdeenshire choose to make donations to several local charities and this year we are pleased to announce that the Cystinosis Foundation UK has been chosen to receive… 

Issue 14 (April 2008) of our newsletter has recently been released and all members should now have their copy. The newsletter also includes information about the international conference in Dublin during June of this year.… 

The People.co.uk cover the story of Jodi Smith, a Cystinosis sufferer, and her brave decision to have a baby. For the full story see ThePeople.co.uk.

We are pleased to announce that our fundraising total now stands at a magnificant £133,053.63. This total has been raised by the hard work of many individuals giving up their time and talents to help… 

30 friends of the Grier family, in the USA, organised a fundraising evening in honour of Holt Grier who suffers from Cystinosis. An unbelievable $75,000 was raised during the night through auctions of items gifted… 

It’s now only two and half months until the bi-annual International Cystinosis Conference in Dublin. The conference is a chance for both families and professionals to meet, chat, learn and share experiences, and a full…