Remember to use easyfundraising for all your shopping. It includes lots of big retailers – all you need to do is first go to easyfundraising.org.uk/causes/cystinosis-foundation-uk and select the link to your retailer and they will donate…
If you are a UK tax payer, by completing our Gift Aid Declaration, we can claim tax back from the Government making your donation worth about 25% more, at no cost to yourself! And higher rate…
You can easily donate in a variety of ways: Online at Just Giving. Send a cheque made payable to The Cystinosis Foundation UK at the address on our contacts page. Make a regular contribution. Donate via bank transfer to our…
After joining our mailing list you will be sent our periodic newsletter. We will keep you informed of news and events, as and when they occur. Find out more…
The Foundation has been made aware that some families have recently been having difficulty receiving cysteamine eye drops at the correct dose of 0.55%. We have made enquiries to various different organisations into this and…
A big thank you to Scott Hutchison of the band Frightened Rabbit for raising nearly £800 for CFUK over Christmas. Scott, uncle to 2 year-old Morven Hutchison, who has cystinosis, wrote, recorded and published this…
Thanks to the staff at Glasgow Airport, who treated 11-year-old Zac Borland to what sounds like a dream come true for any boy. As reported in the Daily Record at the link below, Zac, who…
Issue 21 of the Foundation newsletter has recently been finalised and is available to download at the link below. Thank you to everyone who has contributed to the content. Newsletter November 2012 The paper version…
The US-based Cystinosis Research Network have just released their Cystinosis Parent Handbook. The handbook, available online at the link below, is a very comprehensive resource for parents of children with cystinosis as well as older…