Sunderland University has been a focal point for the Cystinosis Foundation UK for several years now, with financial support being provided by the Foundation to fund research projects. Through the hard work of Professor Roz…
The Cystinosis Foundation UK is looking for some extra assistance with writing news articles and producing content for the website. This voluntary role would involve writing and editing articles related to Cystinosis to be used…
Paul and Paula Ingham’s four-year-old son, Harley, was diagnosed with Cystinosis and the family were recently featured in Sheffield newspaper, the Sheffield Star. You can read the full story online at: The Sheffield Star. The…
The Cystinosis Research Network conference will take place between 14-16th July 2011 in San Francisco. The 3 day event will include sessions with researchers and medical professionals from the field of Cystinosis, as well as…
We are grateful to Sunderland University for allowing us to reproduce this video outlining research at the university, including their work sponsored by the Cystinosis Foundation UK. The 4 minute film reviews research at Sunderland…
A big well done to Martin Kemp, who yesterday ran the Silverstone Half Marathon as part of his training preparation for the London Marathon in May this year. Martin ran the half marathon, which included…
On 9th April 2011, a bumper 11 mile sponsored walk will be taking place in Sheffield in support of the Cystinosis Foundation UK. The walk starts at 9.00am at Sheffield Wednesday’s Hillsborough stadium (but walkers…
A big well done to Jessica Kemp who, on realising she could not join the Sheffield Sponsored Walk For Cystinosis, challenged her friends to sponsor her £200 in return for which she would shave off…
Drew Axford-Ewing is 9 months old and has Cystinosis. He was diagnosed with Cystinosis on Christmas Eve and his story, and that of his family, was recently featured in the Devonshire press. The full story…
The Cystinosis Foundation would like to thank Robert and Myra Mellors for raising £500 for the Cystinosis Foundation UK. Myra Mellors supported the Foundation by running in the Bupa Great Winter Run at Holyrood Park…