Sunderland University has given us an update on their research into the use of prodrugs as a treatment for cystinosis: Summary of Cystinosis Research at the University of Sunderland – Winter/Spring 2014 Research at the… Update on Prodrugs Research at Sunderland University
To all cystinosis patients… There are a few registry databases that from time to time you are asked to populate your details into, these are of course important. One that will become more important in… Rare Renal Registry
We are pleased to announce that we have extended the funding to University of Sunderland to continue their work on Developing a Prodrug for the treatment of Cystinosis. This £75,000.00 of funding will support the… Further Funding for Sunderland Prodrug Development
Massive thanks and congratulations to John Hannah, who finished the Bank of Scotland Great Scottish Run Half-Marathon in 1 hour 44 minutes last weekend – a new personal best! In doing so, he raised over… Great Scot!
After donating a kidney to his son Ben last year, Jonathan Cox will be cycling from Land’s End to John O’Groats for Cystinosis Foundation UK in September. Yes, that’s almost 1000 miles. Jonathan is keen to… Cycling the length of the country for CFUK
There have been some incredible fundraising efforts for the Foundation over the past few years, but the Guild family from Ayrshire in Scotland really have raised the barn! Emma and Stevie, whose daughter Erin has… A barnstorming fundraiser!
We are delighted to announce that the 8th International Cystinosis Conference will be held in Manchester, UK in late July 2014. Further details of location and date will be issued soon. We are looking forward… 2014 International Conference
Riley was diagnosed with cystinosis, at the age of 16 months, in January this year. His family decided to try and raise money for Cystinosis Foundation UK. They immediately set up a JustGiving page and were overwhelmed with their friends… Sweet Success
The Trustees are delighted to welcome you to our new website. We hope you like the new design, which is meant to make it easier for you to find what you need. Massive thanks to… NEW WEBSITE
Congratulations to Damien Froehlich, Emily Froehlich, Cheryl Leigh and Lisa Tattersall, also known as Team Tache Dash for Cash, for completing the Bupa Great Manchester 10K Run on Sunday 26th May. They joined 40,000 other… Team Tache Dash for Cash at Great Manchester 10K Run!