Old Car? Scrap It for Cystinosis
We have recently joined a website called Giveacar, which collects old cars, scraps or auctions them, then donates the proceeds to charity. Do you own a vehicle that you want to sell or get rid…
Charity Wristbands for Sale
Those of you who attended the conference in Manchester might have seen the Trustees sporting these fetching charity wristbands and wondered – where can I get hold of these? We are pleased to announce that…
Update on Prodrugs Research at Sunderland University
Sunderland University has given us an update on their research into the use of prodrugs as a treatment for cystinosis: Summary of Cystinosis Research at the University of Sunderland – Winter/Spring 2014 Research at the…
Rare Renal Registry
To all cystinosis patients… There are a few registry databases that from time to time you are asked to populate your details into, these are of course important. One that will become more important in…
Further Funding for Sunderland Prodrug Development
We are pleased to announce that we have extended the funding to University of Sunderland to continue their work on Developing a Prodrug for the treatment of Cystinosis. This £75,000.00 of funding will support the…
Great Scot!
Massive thanks and congratulations to John Hannah, who finished the Bank of Scotland Great Scottish Run Half-Marathon in 1 hour 44 minutes last weekend – a new personal best! In doing so, he raised over…
Cycling the length of the country for CFUK
After donating a kidney to his son Ben last year, Jonathan Cox will be cycling from Land’s End to John O’Groats for Cystinosis Foundation UK in September. Yes, that’s almost 1000 miles. Jonathan is keen to…
A barnstorming fundraiser!
There have been some incredible fundraising efforts for the Foundation over the past few years, but the Guild family from Ayrshire in Scotland really have raised the barn! Emma and Stevie, whose daughter Erin has…
2014 International Conference
We are delighted to announce that the 8th International Cystinosis Conference will be held in Manchester, UK in late July 2014. Further details of location and date will be issued soon. We are looking forward…
Sweet Success
Riley was diagnosed with cystinosis, at the age of 16 months, in January this year. His family decided to try and raise money for Cystinosis Foundation UK. They immediately set up a JustGiving page and were overwhelmed with their friends…