Ami Froehlich organised a ‘tuck shop’ at her work, selling snacks and lunch time treats to colleagues from mental health and learning disability services based at Ormskirk hospital. Since starting the shop in April 2015… ‘Tuck Shop’ Treats to Raise Money for Cystinosis Foundation UK
Scott Hutchison, who is a member of Scottish indie rock band, Frightened Rabbit, has auctioned his Fender Jaguar ’65 American Vintage guitar on eBay, raising over £1,300 for Cystinosis Foundation UK. Scott and the rest… Scott Hutchison Auctions Guitar to Raise £1,300
Cystinosis Foundation (based in the USA) have announced that the next international cystinosis congress is to take place at the Barcelo Valencia Hotel in Valencia, Spain between the 30th June and 2nd July, 2016. Valencia… 9th International Cystinosis Congress to Take Place in Spain
We have just released a new improved fundraising guide. It’s packed full of information to help you plan your next fundraising event. Download Fundraising Guide We hope you find it useful, please contact us… New Fundraising Guide Now Available
The Cystinosis Foundation UK has a small dedicated team of trustees that run its operation, these trustees are all volunteers and carry out their duties in their own time. To keep the charity moving forward… Become a Trustee
Cystinosis Research Network is looking for art contributions from cystinosis patients, to be part of a travelling art exhibition. This includes all types of creative work such as photography, poetry, music, painting and sculpture. You… Artwork Needed for Art Exhibition
We need your feedback! A new model of care for cystinosis has been proposed as part of the national designation application to NHS England. Your feedback is vital, the model of care needs to suit… National Designation Survey – Your Chance to Have a Say
It’s that time of year again, flu season! The NHS recommends that people with long term health conditions, including cystinosis, have a flu vacinne. Patients who have had a transplant are at increased risk of… Have You Had a Flu Vaccine?
We have recently joined a website called Giveacar, which collects old cars, scraps or auctions them, then donates the proceeds to charity. Do you own a vehicle that you want to sell or get rid… Old Car? Scrap It for Cystinosis
Those of you who attended the conference in Manchester might have seen the Trustees sporting these fetching charity wristbands and wondered – where can I get hold of these? We are pleased to announce that… Charity Wristbands for Sale