Huge congratulations to Anne McQuitty, of West Linton in Scotland, who has completed her 60 for 60 running challenge. Anne , already a keen runner, decided that she was going to set herself the challenge… 

Nikki Wood is once again selling hand made Christmas cards on eBay, with all proceeds being donated to us. They are being sold by auction so bid now before it’s too late! [auction-nudge tool=”listings”]  … 

Ami Froehlich organised a ‘tuck shop’ at her work, selling snacks and lunch time treats to colleagues from mental health and learning disability services based at Ormskirk hospital. Since starting the shop in April 2015… 

Scott Hutchison, who is a member of Scottish indie rock band, Frightened Rabbit, has auctioned his Fender Jaguar ’65 American Vintage guitar on eBay, raising over £1,300 for Cystinosis Foundation UK. Scott and the rest… 

We have just released a new improved fundraising guide. It’s packed full of information to help you plan your next fundraising event. Download Fundraising Guide   We hope you find it useful, please contact us… 

The Cystinosis Foundation UK has a small dedicated team of trustees that run its operation, these trustees are all volunteers and carry out their duties in their own time. To keep the charity moving forward… 

Cystinosis Research Network is looking for art contributions from cystinosis patients, to be part of a travelling art exhibition. This includes all types of creative work such as photography, poetry, music, painting and sculpture. You… 

We need your feedback! A new model of care for cystinosis has been proposed as part of the national designation application to NHS England. Your feedback is vital, the model of care needs to suit… 

It’s that time of year again, flu season! The NHS recommends that people with long term health conditions, including cystinosis, have a flu vacinne. Patients who have had a transplant are at increased risk of…