John Terry, Cystinosis Foundation UK The Fourth International Cystinosis Conference was held in Noordwijkerhout in the Netherlands on the weekend 30 June to 2 July. I went with Jonathan and his mother, June, and attended… 2006 International Cystinosis Conference – July 2006
As part of activities to mark Cystinosis Day, Philippa Blackham, who lives in Edinburgh, baked various cakes and biscuits, which were sold at a cake sale at W Greens, Legal Publishers, her place of work.… Super Chef Sells Sixty Pounds
The grandparents of 5-year-old Cystinosis sufferer, Lena Forsyth, raised £700 for the Cystinosis Foundation UK at a dance night in Mintlaw, Aberdeenshire. The dance was held on Saturday, 20th May at the Mintlaw Public Hall… £700 Raised At Dance Night
The Cystinosis Foundation in the USA has for the last few years run a support forum for those connected and affected by Cystinosis. The forum is free to participate in and only requires that you… Cystinosis Support Forum (USA)
It is well known that Cystinosis is a rare condition, and with only 30 diagnosed individuals across the whole of Australia and New Zealand, it can be even harder to cope with in these vast… News From Australia
On May 28th Max Kendell (13 years old) and his friend George Crossley (14 years old) raised nearly £200 for the Cystinosis Foundation by cycling 37.25 miles from Tutbury to Derby and back again! Their… 37 mile cycle for Cystinosis
A further update to our research campaign – as of May 2006, we have now raised £78,522 towards our £100,000 appeal target! Yet again we thank all of those involved in raising funds – from… £78,522 Raised!
In September this year, Paul Clifford is hoping to cycle around 778km through Spain and France in order to raise money for the Cystinosis Foundation UK. This money will be used to fund the Foundation’s… We Need A Bike!
We are pleased to announce that fundraising packs are now available for those wishing to organise their own fundraising events in support of the Cystinosis Foundation UK. These packs will be available in limited numbers,… Fundraising Pack Now Available
A wonderful night was had by all on Saturday 4th February at the Gosling Sports Centre in Hertfordshire. Organised by Tracy Lambe, cousin to Sinêad and Ciara Maguire who both have Cystinosis, it was a… £7,000 Raised at Fundraiser Night