Nevaeh Lynn Stanford was diagnosed with Cystinosis at 17 months. Now a little over two, she is on medication that has begun improving the quality of her life. Her strict daily routine is still hard… 

8th December 2009 Chairperson, Roy Forsyth, presented with a cheque by Albyn School, Aberdeen. This year the Cystinosis Foundation UK celebrated its 10th birthday and it could be said that our small charity has now… 

Competition Now Closed The Cystinosis Foundation UK is launching a competition for a new logo and inviting you to design it. We have no pre-conceptions of what this new logo should look like, so only… 

We would like to thank the Mason’s Lodge for selecting the Cystinosis Foundation UK as the key charity for their St Kenya Ladies Fundraising Night 2009, at the Grand Hotel in Bristol, last Saturday (21st… 

A big thank you goes to the pupils of Lower 4 at the Albyn School in Aberdeen, after their fundraiser for the Cystinosis Foundation UK raised £400! A home work assignment about newspapers turned into… 

Congratulations to Victoria Elliott who successfully ran 10Km in The Human Race 2009 on October 24th in a personal best time of 57 minutes and 25 seconds. Victoria, who was running in memory of the… 

Congratulations to Kelly Chapman, Hayley Mullings and Poppie Blake who all did a dare-devil dive with sharks on Saturday 10th October 2009 at The Blue Planet Aquarium in Cheshire. The dive was organised to raise… 

Over the past month we have had a flurry of donations via our Pay Pal on-line donation facility. Data protection rules state we cannot contact the individuals to thank them, so we would like to… 

Recently news has been released that a research group at the Scripps Research Institute in San Diago, USA have successfully cured mice with Cystinosis using stem cells from bone marrow. This is great news and…