The Cystinosis Foundation UK has a board of trustees who meet on a regular basis to discuss recent events, future strategy and how best to utilise our resources to their greatest benefit. The board all… Meet The Team

We continue to strive to achieve our goal to raise a research fund of £200,000, which was decided by the Trustees in February 2007, and the appeal total now stands at just over £150,000. We… Fundraising update

The Cystinosis Foundation UK would like to thank Lundin Britain Ltd and, in particular, their crew on the Thistle oil platform in the North Sea for their recent donation of £500. The crew stated that… £500 Donation Received

The charity Climb has recently released its latest newsletter, which can be viewed at www.climb.org.uk/ER News/ERNews.htm. The newsletter provides information on the progress of research into various metabolic diseases. Climb is a national organisation working… Climb Newsletter Released

The Cystinosis Foundation UK has now signed up with eBay, allowing you to help us raise money for Cystinosis Research. Whenever you now sell something on eBay you can choose to make a donation from… Selling On eBay?

Foundation secretary, John Terry recounts the major events of the last 10 years. The Cystinosis Foundation UK has now been in existence for over 10 years. The first meeting of the founding committee, brought together… The Foundation is 10 years old!

A group of six brave and energetic people will head off from Catherine De Barnes, near Solihull on 2nd July at the start of a 100 mile walk, which will end on 4th July at… Calling All You Walkers!

On May 1st an Indie & 80’s themed disco was organised in conjunction with the Cystinosis Foundation Ireland. Sue Maguire, of the Cystinosis Foundation Ireland, reports that the disco was a great success and that… Indie And 80’s Disco Success

7.30pm Fri 1st May Stevenage Rugby Club,North Rd, Stevenage Entry: £5 On May 1st an Indie & 80’s disco is being organised in conjunction with the Cystinosis Foundation Ireland, with money raised going to local… Indie And 80’s Disco

We all have our story. And the daily pressures of living with Cystinosis are not easy. However, below are two stories, one from Anne Maire O’Dowd (Cystinosis Ireland) and the other from Angela McCoy in… If You Ever Need Inspiration