Review Of The Year
Christmas time is always a time for reflection, and looking back on this year you remember what a year it has been for the Foundation and Cystinosis Research worldwide. The highlight of the year was…
Simultaneous kidney transplant for twins
A ground breaking kidney transplant operation has recently been carried out on 10-year-old twin girls, who both suffer from Cystinosis. The twins each received a kidney from the same donor on the same day and…
Fore A Cure
An extraordinary $225,000 (£150,000) was raised by a fundraising golf tournament held in California, USA, last month. On 10th November, 144 golfers gathered at the Coto de Caza Golf & Racquet Club in Orange County…
Supporting CLIMB
On the 18th October, CLIMB held their annual conference. This year the focus was on "Mitochondrial and Peroxisomal Disorders" with presentations ranging from specific medical topics on stem cell research to more general sessions such…
Research Grant Award
The Foundation has made an award of £26,335 over two years to The Robert Gordon University in Aberdeen. The award will support work supervised by Dr Graeme Kay in the School of Pharmacy and Life…
Quantum of Solace Fundraiser
Bond fans were treated to a night of thrills and glamour on Friday 31st October, as a charity screening of Quantum of Solace was held at the Reel Cinema in the Phoenix Leisure Centre, Crewe.…
Help Us Raise Money For Nothing
Earlier this year we introduced our on-line shopping mall – before you make any purchase on-line, check out our site at http://buy.at/cystinosis/ and if the retailer is listed there, click their link and any purchases…
Newsletter 2008 Issue 15
Issue 15 (September 2008) of our newsletter has recently been released and all members should now have their copy. Thank you to everyone who has contributed to its content! If you have not received your…
26 Research Abstracts!
Twenty-six scientific abstracts studying the treatment and cause of Cystinosis originating from researchers from all over the world have been published in the October 2008 edition of Pediatric Nephrology. These 26 abstracts are the result…
Applications For A New Trustee
Would you like to be on the committee of the Cystinosis Foundation UK ? Our charity is now nearly 10 years old and during this time has run with a small committee of trustees who…