Merry Christmas – Review Of the Year
And before we know it, it is Christmas time again already! It’s been a successful year for the Foundation and now is a good time to look back and reflect on some of the highlights.…
Prodrugs of Cysteamine – Dec 2006
Dr Roz Anderson, Professor Paul Groundwater and Mr Pratap Suryadevara, Sunderland Pharmacy School, University of Sunderland Aims of the prodrug project Although the vast range of research on gene therapy is encouraging, it is still…
Wearside Youngsters Awarded For Their Bravery
On 15th November, the Pride of Wearside awards took place in front of an audience of 400 people at Sunderland Football Club’s "Stadium of Light". Five youngsters were chosen to receive awards in recognition of…
Research Supported By Cystinosis UK (Summary) – Nov 2006
John Terry, Cystinosis Foundation UK Introduction Since 2002 the Foundation has been supporting research in the Pharmacy School at Sunderland University led by Dr Roz Anderson and Prof. Paul Groundwater which is aimed at developing…
Nearly £83,000 Raised!
As of October 2006 we have now raised £82,926.27 towards our £100,000 research project appeal target, with £10,000 being raised over the course of this year. This figure does not yet include some monies from…
Brett and Brittney LeBeau’s Story
The NapervilleSun news website reports on the story of Brett and Brittney LeBeau, whose two children have both been diagnosed with Cystinosis. To read about their story, see the Naperville website.
Professor Cairns Updates Us On His Research
On October 2nd, Vicky and Roy Forsyth, of Mintlaw Aberdeenshire, met up with Professor Don Cairns and his team at the Robert Gordon University in Aberdeen to see first hand the research they have been…
Windowstyle UK’s annual golf challenge raises £500 for Cystinosis Family Support Network
On September 26th, Windowstyle UK raised £500 during their annual golfing challenge for the Cystinosis Family Support Network (CFSN). The golfers decided to support the CFSN after being impressed by the fund raising efforts of…
Paul Clifford completes his 800Km cycle for Cystinosis
Earlier this month, Paul Clifford set off on his challenge to cycle over 800Km from the Southern tip of France, across the Pyrenees, along northern Spain, over several more mountain ranges to Santiago, following an…
Jenna & Patrick’s Foundation of Hope
In March 2006, at 21 months old, Jenna and Patrick Partington were diagnosed with Cystinosis. Their doctors had initially never heard of Cystinosis and believed that it was only a text book disease. Jenna and…