In August, Ashley Kazian was crowned this year’s Miss America. And whilst this is a fantastic achievement for Ashley, it is also a major event for the Cystinosis Foundation in the USA, as she is… 

The Jones Cup golf tournament, Orange County, California will this year be supporting the Cystinosis Research Foundation (USA) in honour of local businessman Marion Halfacre, who died earlier this year of heart complications. “I am… 

Cystinosis sufferer, Sarah Laing, received a kidney transplant about a year ago. Until then, Sarah had to undergo dialysis 3 times a week after Cystinosis caused her kidneys to fail. Sidney the Kidney, as Sarah… 

Cystinosis sufferer, Kellen Binger, looks forward to his swim meet, following a kidney transplant last year. For the full story please visit: www.checkbiotech.org.

Elizabeth Forsyth, grandmother to Cystinosis sufferer Lena Forysth, has again been busy raising funds for the Cystinosis Foundation UK. She spent the weekend at her local Asda in Peterhead, selling raffle tickets, quizzes and Cystinosis… 

The Cystinosis Foundation would like to thank the charity committee on the Apache Forties Charlie oil platform, in the North Sea near Aberdeen, for their kind donation of £150 to the Cystinosis Foundation UK. The… 

Kevin Partington and wife, Teresa, have twin toddlers who both suffer from Cystinosis. Friends and colleagues organised a golf tournament and 5km walk that raised an amazing $406,000!! The full story can be read at… 

On July 7th, as part of ‘Cystinosis Day’, Gavin Reddington, the Cystinosis Foundation UK fund raiser, raised £500 during a bikers’ day at his local pub, the Sitwell Arms in Morton, Derbyshire! Live bands played… 

We are pleased to announce our first fundraising update as part of our new campaign. Following our success in reaching our £100,000 target at the end of last year, we set the target of raising…