Huge congratulations to Scott Clarkson, Jonathan Garrett and Richard Ayre (a.k.a. the Hairy Hikers – pictured) who completed the Lyke Wake Walk on 19 May 2012, raising over £2,000 for Cystinosis Foundation UK in the…
The Foundation is delighted to announce that it achieved its goal of raising £300,000. Since the original target of £100,000 was set in 2004, eventually increasing to £300,000 in 2010, a grand total of £312,261…
Well done to CFUK Trustee Neil Hutchison and his wife Alex, who raised £1,088 (and 15 pence!) through a quiz night and raffle hosted in their local bowling club in West Linton. The quiz, universally…
Sisters Emily,3, and Poppy-Mae,23 months, have recently raised awareness for cystinosis by appearing in both the Sun and Daily Mail newspapers. Mum, Jessica Kemp, 25, was eight months pregnant with Poppy-Mae when Emily was finally…
Kelly Chilvers, mother of 17 month old Daniel Howell who has Cystinosis, is proud to report a very successful fundraiser for Cystinosis Foundation UK. Her aunt, Elaine Thomas, held a Coffee Morning and an Easter…
2012 is a year where many hopeful athletes undergo hours of training and physical exertion in order to better themselves to compete in the Olympics. In that spirit, one of the Cystinosis Foundation UK trustees…
On June 26th around 80 people will be taking part in the 2012 Card Gains Olympic Challenge! The challenges involves walking a 30 kilometre circular route, starting at Putney Wharf by the Thames in London,…
We set ourselves the target of raising £300,000 to help support research for the improvement of cystinosis treatments. By November 2011 we had raised £265,208. Now, in February 2012, we are pleased to announced the…
The Foundation is trialing a “Once A Month Chat Line” to allow those affected by cystinosis to have a discussion with others touched by the condition. The call will be chaired by Jonathan Terry (charity…
The Cystinosis Foundation UK are pleased to announce the appointment of 3 new trustees to the charity. The last few years have seen a continued growth of the charity. By that we mean an increased…