Hand Made Christmas Cards for Sale
Nikki Wood is once again selling hand made Christmas cards on eBay, with all proceeds being donated to us. They are being sold by auction so bid now before it’s too late! [auction-nudge tool=”listings”] …
‘Tuck Shop’ Treats to Raise Money for Cystinosis Foundation UK
Ami Froehlich organised a ‘tuck shop’ at her work, selling snacks and lunch time treats to colleagues from mental health and learning disability services based at Ormskirk hospital. Since starting the shop in April 2015…
Tough Mudder Iain Raises £17,000
Iain McGilvray has raised over £17,000 for Cystinosis Foundation UK by completing a gruelling “Tough Mudder” event in June this year. He had to endure mud climbs, ice baths and even electric shocks! Iain decided…
Scott Hutchison Auctions Guitar to Raise £1,300
Scott Hutchison, who is a member of Scottish indie rock band, Frightened Rabbit, has auctioned his Fender Jaguar ’65 American Vintage guitar on eBay, raising over £1,300 for Cystinosis Foundation UK. Scott and the rest…
9th International Cystinosis Congress to Take Place in Spain
Cystinosis Foundation (based in the USA) have announced that the next international cystinosis congress is to take place at the Barcelo Valencia Hotel in Valencia, Spain between the 30th June and 2nd July, 2016. Valencia…
Derby Moor Student an Inspiration to Us All
Derby Moor student Eeshar Seehra was thrilled to achieve 3 A Levels in Maths, Physics and Media. What makes this an exceptional achievement is the fact that he has the rare inherited disease Cystinosis. Despite…
New Fundraising Guide Now Available
We have just released a new improved fundraising guide. It’s packed full of information to help you plan your next fundraising event. Download Fundraising Guide We hope you find it useful, please contact us…
Morven’s Story
Morven is a brave 5 year old girl who has cystinosis. Please watch this video for an insight into her day to day life. She is daughter to Cystinosis Foundation UK treasurer Neil Hutchison and…
Rare Disease Day 2015
28th February 2015 is the eighth international Rare Disease Day, which takes place on the last day of February each year. The main objective of Rare Disease Day is to raise awareness amongst the general…
Luka Prepares for London Marathon
Luka Babiy, whose sister has cystinosis, is running the London Marathon this year despite never having previously ran a marathon. We are extremely grateful to Luka for choosing to raise money for us in this…