When Will Newman’s granddaughter, Ellie, was diagnosed with cystinosis 5 months ago he wanted to help raise awareness of the condition. On 9th December he had ‘Ellie’ shaved into his head, a fantastic, albeit unusual… Grandfather Shaves Head for Cystinosis
We would like to congratulate Professor Roz Anderson, Professor of Pharmaceutical Chemistry at the University of Sunderland, who has been recognised with a ‘Women in STEM WIN award’ last month. The award recognises Roz’s commitment… Professor Roz Anderson Receives Women in STEM WIN Award
We (Neil Hutchison and Roy Forsyth) have just been at Sunderland University for a meeting with the research team there. This was to hear about the updates to the Prodrug research we are currently funding… Prodrug Research Update – November 2016
Cystinosis Foundation UK supporter, Wendy Exelby, who has a son with cystinosis, will be doing a 16.6. mile sponsored walk from her home in Old Goole through to Adlingfleet where she grew up. The walk… Wendy Will Walk 16 Miles for Cystinosis Research
Back in June this year a group of energetic fundraisers took part in the Gung-Ho! Seriously Fun 5K Inflatable Obstacle Course in Edinburgh. David Kells, Adam Neilson, Steve Gault & Rebecca Gault all took part… Edinburgh Fundraisers Go Gung-Ho for Riley
Cystinosis Foundation UK supporter Amy Mace recently organised an ambitious charity quiz night. In addition to a quiz the event also included a raffle with generous prizes donated by local businesses. It took place on… Charity Quiz Night a Huge Success!
We would once again like to thank Redcar and Cleveland’s Mayor Councillor Brenda Forster for choosing Cystinosis Foundation UK as one of her chosen charities, along with the Great North Air Ambulance Service (GNAAS). Mayor… Mayor Hosts Charity Ball
A new research paper has been published as a result of the work undertaken at the University of Sunderland to develop a prodrug for the treatment of cystinosis. Cystinosis Foundation UK has been able to… Breakthrough In Prodrug Project
Huge congratulations to Anne McQuitty, of West Linton in Scotland, who has completed her 60 for 60 running challenge. Anne , already a keen runner, decided that she was going to set herself the challenge… 60 for 60 for Cystinosis