Mick Swift, Cystinosis Foundation Ireland Chairman Just a few days ago, the 5th International Cystinosis Conference was held in Dublin, Ireland, with around 200 medical professionals, cystinotics and family members from around the world in…
IKEA is now offering a donation to Cystinosis Foundation UK when you make a purchase via our webshop. IKEA offers a wide range of well-designed, functional home furnishing products at low prices. 2% of what…
On June 18th Michelle Smith (37), from Leven in Fife, is to undergo an operation to donate one of her kidneys to her 18-year-old son, Michael Corrigan, in order to help improve the quality of…
The Cystinosis Foundation UK would like to wish the team of 6 runners, from oil firm Lundin, good luck in the Baker Hughes 10K in Aberdeen on May 25th. All sponsor monies raised by the…
Become a member of FT.com via our webshop. We’re now working with FT.com. When you register with FT.com they’ll donate 50p to the Cystinosis Foundation UK. Registration at FT.com is FREE and you will get…
Cystagon can have some side-effects, such as its unpleasant smell, although the Foundation is currently supporting research projects to help mask this effect. However, do you know about Crystal Breath? This product from DenTek is…
Judo stars Daniel Kelly and Maria Pekli were preparing to represent Australia at the Olympics, but their plans suffered a set back when their two-year-old son, Erik, was diagnosed with Cystinosis. However, with support from…
Issue 14 (April 2008) of our newsletter has recently been released and all members should now have their copy. The newsletter includes information about the international conference in Dublin during June of this year. To…
Help make your event stand out. We are pleased to announce that the Cystinosis Foundation UK is now able to provide tabards to help you with any fundraising you are undertaking on our behalf. They…
Zowiann Flood suffers from Cystinosis, but her life has been transformed following a recent kidney transplant and she is now looking forward to her first piece of birthday cake on her 13th birthday in a…