Bowled Over To Be Chosen
Every year, the Buchan Indoor Bowling Club in Aberdeenshire choose to make donations to several local charities and this year we are pleased to announce that the Cystinosis Foundation UK has been chosen to receive…
Newsletter Published
Issue 14 (April 2008) of our newsletter has recently been released and all members should now have their copy. The newsletter also includes information about the international conference in Dublin during June of this year.…
Desperately Ill Wife Who Conquered All The Odds
The People.co.uk cover the story of Jodi Smith, a Cystinosis sufferer, and her brave decision to have a baby. For the full story see ThePeople.co.uk.
Fundraising Update
We are pleased to announce that our fundraising total now stands at a magnificant £133,053.63. This total has been raised by the hard work of many individuals giving up their time and talents to help…
Hearts For Holt
30 friends of the Grier family, in the USA, organised a fundraising evening in honour of Holt Grier who suffers from Cystinosis. An unbelievable $75,000 was raised during the night through auctions of items gifted…
International Conference
It’s now only two and half months until the bi-annual International Cystinosis Conference in Dublin. The conference is a chance for both families and professionals to meet, chat, learn and share experiences, and a full…
Finding Hope for Holt
2-year-old Holt Grier suffers from Cystinosis. His parents have started Hope For Holt, an organisation working with the Cystinosis Foundation USA, to raise awareness of Cystinosis and money for research. Recently their story was highlighted…
21st Party Raises Over £500
On 29 December 2007, Alana Munro and Emma Robb celebrated their 21st birthdays at a joint party at the Pitfour Arms Hotel in Mintlaw. However, instead of receiving presents, the two birthday girls requested that…
CLIMB wins £10,000!!
We are pleased to be able to start 2008 with the news that CLIMB has won an award of £10,000 from the Royal Bank of Scotland/Daily Mail Children’s Charity Awards. Every year, the Royal Bank…
Merry Christmas 2007
2007 has been a remarkable year for the Cystinosis Foundation UK – put simply we achieved one of our most ambitious aims to date, when in February we succeeded in raising £100,000 for the funding…