During August of this year, 7-year-old Avneet Seehra became a princess for a day, thanks to the “Make a Wish Foundation”. Avneet, who suffers from Cystinosis, was given a make over, taken to a local… Princess For A Day

On June 27 and 28th of this year, the biennial International Cystinosis Conference was held in Dublin, Ireland. Over 200 delegates attended, including researchers, medical practitioners, representatives from the Irish government, Cystinosis sufferers, families of… International Cystinosis Conference Report

On Saturday 9th August, the Fishermen’s Mission held their annual Peterhead Harbours Open Day. This event involves various stands and stalls from local organisations and charities, including a stall for the Cystinosis Foundation UK, organised… First Minister’s Support For Fundraiser

In the 2000 Olympics, Maria Pekli won the bronze medal in the 57kg Judo category. Beijing was to be her last Olympics, but when her son, Erik, was diagnosed with Cystinosis her career was put… 5th Place for Olympic Heroine Maria Pekli

We are pleased to announce an update to our fundraising total – as of August 2008, we have now raised £138,030! This has been achieved through the support of many individuals and organisations. Fundraising activities… Fundraising Update

On May 25th 6 runners, from oil firm Lundin, ran in the Baker Hughes 10K in Aberdeen. And we are pleased to announce that the successful runners managed to raise £1,118.00 – money that will… Well Done Lundin Runners

In June we reported on the story of Michelle Smith (37), from Leven in Fife, who was due to undergo an operation to donate one of her kidneys to her 18-year-old son, Michael Corrigan, who… Brave Mum Donates Kidney (Update)