We are pleased to announce that our latest newsletter has just been released. The newsletter is free to our members and details recent activities regarding the Cystinosis Foundation UK, Cystinosis and related news. If you… Newsletter Release

Back in May of this year, over 100 pupils from the Lawrence School of Dance in the North East of Scotland put on a two-night event at the Peterhead Community Centre in aid of the… Dance Show Fundraiser For Cystinosis

Keen runner Wayne Bray has set himself the target of tackling 10 half marathons between November 2007 and November 2008 and hopes to raise money for the Cystinosis Foundation UK in the process. He will… A Year Of Running

The Cystinosis Foundation UK have registered with the recently formed Fundraising Standards Board. Charities signed up with the Board agree to adhere to a strict set of rules that ensure fundraising activities are undertaken responsibly.… Give In Confidence

One of the primary aims of the Cystinosis Foundation UK is to aid research, in order to help develop new medicines and improve existing ones. Professor Don Cairns, of the Robert Gordon University in Aberdeen,… Making A Difference In Research

Since July we are pleased to announce that we have now raised a further £10,000, bringing our campaign’s running total up to £122,828. This includes a £5,000 donation from the Grand Lodge within the last… Fundraising Update

The Royal Antediluvian Order of Buffaloes have donated their annual award for medical research to the CFUK and on the 1st September, at their national conference at the town hall in Dudley, a cheque for… £5,000 Cheque from Grand Lodge

What started as a neighbour asking if they could do a sponsored walk for recently diagnosed Cystinosis sufferer Holt Grier, soon became 150 people raising over $12,000! For the full story see: griertown.blogspot.com.

When researching any disorder that is genetic in origin, finding a cure can be greatly enhanced by being able to quickly identify the genes causing the condition. The problem is identifying which of the 25,000… Research in the USA helps identify disorder related genes quicker