Every year, the Buchan Indoor Bowling Club in Aberdeenshire choose to make donations to several local charities and this year we are pleased to announce that the Cystinosis Foundation UK has been chosen to receive… Bowled Over To Be Chosen
Issue 14 (April 2008) of our newsletter has recently been released and all members should now have their copy. The newsletter also includes information about the international conference in Dublin during June of this year.… Newsletter Published
The People.co.uk cover the story of Jodi Smith, a Cystinosis sufferer, and her brave decision to have a baby. For the full story see ThePeople.co.uk.
We are pleased to announce that our fundraising total now stands at a magnificant £133,053.63. This total has been raised by the hard work of many individuals giving up their time and talents to help… Fundraising Update
30 friends of the Grier family, in the USA, organised a fundraising evening in honour of Holt Grier who suffers from Cystinosis. An unbelievable $75,000 was raised during the night through auctions of items gifted… Hearts For Holt
It’s now only two and half months until the bi-annual International Cystinosis Conference in Dublin. The conference is a chance for both families and professionals to meet, chat, learn and share experiences, and a full… International Conference
2-year-old Holt Grier suffers from Cystinosis. His parents have started Hope For Holt, an organisation working with the Cystinosis Foundation USA, to raise awareness of Cystinosis and money for research. Recently their story was highlighted… Finding Hope for Holt
On 29 December 2007, Alana Munro and Emma Robb celebrated their 21st birthdays at a joint party at the Pitfour Arms Hotel in Mintlaw. However, instead of receiving presents, the two birthday girls requested that… 21st Party Raises Over £500
We are pleased to be able to start 2008 with the news that CLIMB has won an award of £10,000 from the Royal Bank of Scotland/Daily Mail Children’s Charity Awards. Every year, the Royal Bank… CLIMB wins £10,000!!