Keen runner Wayne Bray has set himself the target of tackling 10 half marathons between November 2007 and November 2008 and hopes to raise money for the Cystinosis Foundation UK in the process. He will… A Year Of Running

The Cystinosis Foundation UK have registered with the recently formed Fundraising Standards Board. Charities signed up with the Board agree to adhere to a strict set of rules that ensure fundraising activities are undertaken responsibly.… Give In Confidence

One of the primary aims of the Cystinosis Foundation UK is to aid research, in order to help develop new medicines and improve existing ones. Professor Don Cairns, of the Robert Gordon University in Aberdeen,… Making A Difference In Research

Since July we are pleased to announce that we have now raised a further £10,000, bringing our campaign’s running total up to £122,828. This includes a £5,000 donation from the Grand Lodge within the last… Fundraising Update

The Royal Antediluvian Order of Buffaloes have donated their annual award for medical research to the CFUK and on the 1st September, at their national conference at the town hall in Dudley, a cheque for… £5,000 Cheque from Grand Lodge

What started as a neighbour asking if they could do a sponsored walk for recently diagnosed Cystinosis sufferer Holt Grier, soon became 150 people raising over $12,000! For the full story see: griertown.blogspot.com.

When researching any disorder that is genetic in origin, finding a cure can be greatly enhanced by being able to quickly identify the genes causing the condition. The problem is identifying which of the 25,000… Research in the USA helps identify disorder related genes quicker

In August, Ashley Kazian was crowned this year’s Miss America. And whilst this is a fantastic achievement for Ashley, it is also a major event for the Cystinosis Foundation in the USA, as she is… Newly crowned Miss USA supports Cystinosis awareness

The Jones Cup golf tournament, Orange County, California will this year be supporting the Cystinosis Research Foundation (USA) in honour of local businessman Marion Halfacre, who died earlier this year of heart complications. “I am… Golf Tournament Honours Cystinosis Research Foundation (USA) Supporter

Cystinosis sufferer, Sarah Laing, received a kidney transplant about a year ago. Until then, Sarah had to undergo dialysis 3 times a week after Cystinosis caused her kidneys to fail. Sidney the Kidney, as Sarah… Carry your Donor Card!